Support Groups and Resource Organizations
The Amit Program. An agency that offers a school program and support services for children with learning and/or developmental special needs. 6255 Barfield Rd., Ste. 100, Atlanta. 404-961-9966. amitatlanta.org.
CHADD (Children and Adults with Attention Deficit/Hyperactivity Disorder. Monthly meetings for parents of children in the Atlanta area, and has lending libraries with books, cassettes and videos on AD/HD and co-occuring disorders. Parent meetings are the third Thursday of every month. 4105 Briarcliff Rd. NE Atlanta. 800-518-7298. 404-633-2040 chadd.org.
Feingold Association of the United States. Offers informational materials, online/telephone support and resources. Helps families implement low-additive dietary programs for children with learning/behavior problems and chemically sensitive adults. 37 Shell Rd., 2nd floor, Rocky Points, NY. 800-321-3287. feingold.org.
Learning Disabilities Association of America. Offers support programs for parents, an information and referral network, legislation and school program development. 4156 Library Rd., Pittsburgh, PA. 412-341-1515. ldaamerica.org.
Learning Disabilities Association of Georgia. Offers information and a referral hotline for children and adults, advocacy, family and individual support, resources and more. 2566 Shallowford Rd., Ste. 104, Atlanta. 404-303-7774. ldag.org.
AJAO (American Juvenile Arthritis Organization). Provides informational materials, referrals to local resources, national conferences and advocacy efforts. 1330 W. Peachtree St., Ste. 100 Atlanta. 404-872-7100. arthritis.org.
Arthritis Foundation, Georgia. Offers wellness programs, health fairs, public forums, research support, and information on swimming classes, programs for children, exercise and more. 2970 Peachtree Rd., NW., Ste. 200, Atlanta. 404-237-8771. arthritis.org.
Arthritis Foundation, National Office. Provides literature on all types of arthritis and an information line (800-283-7800). 1330 W. Peachtree St., Ste. 100 Atlanta. 404-872-7100. arthritis.org.
Autism Society of America. Provides services in the areas of advocacy, education, awareness and research. 4340 East-West Hwy., Ste. 350, Bethesda, MD. 800-328-8476. autism-society.org.
Autism Society of America, Greater Georgia Chapter. Provides advocacy, free information and referral services, and membership services including access to a lending library, workshops and conferences. P.O. Box 2662, Suwanee. 770-904-4474 asaga.com.
Autism Speaks, Georgia Regional Office. Provides fundraising for autism research, referrals for family services and advocacy. Also hosts events to raise awareness and build a community for affected families. 900 Circle 75 Pkwy., Ste, 445, Atlanta. 770-451-0570. autismspeaks.org
Bartow County Parent Support Group. Meets the first Thursday of each month at 7 p.m. Cartersville Medical Center. 958 Joe Frank Harris Pkwy. SE, Cartersville. 404-401-6385. autisminbartow.com
Cherokee Autism Parent Support Group. Meets quarterly, based on speaker availabilty. 770-345-6551.
Cherokee Spectrum Support Group. Meets quarterly. 678-493-4925.
Gwinnett County Autism Support Group. Meets the first Thursday of each month at 6:30 p.m. First Baptist Church of Duluth. 2908 Duluth Hwy., Duluth. 770-904-2909. atl-spectrum.com
North Fulton Autism Support Group. Offers a message board and monthly meetings at Emory Johns Creek Hospital. 6325 West Johns Xing, Ste. 109, Johns Creek. 678-315-2498. health.groups.yahoo.com/group/nfasg/
BIRTH DEFECTS AND SIDS
March of Dimes. Provides educational materials on preventing birth defects, premature birth and infant mortality. 1776 Peachtree St., Ste. 100, Atlanta. 404-350-9800. marchofdimes.com.
American Diabetes Association, Georgia Area. Provides financial assistance for children to attend summer camps, advocacy and wellness programs. 225 Peachtree St. NE, Ste. 500, Atlanta. 404-320-7100. diabetes.org.
The Georgia Comprehensive Sickle Cell Center. Education for patients and medical professionals about news, research updates and resources. 80 Jesse Hill Jr. Dr., Atlanta. 404-616-3572. scinfo.org.
Hemophilia of Georgia, Inc. Provides a wide range of services to people with hemophilia, von Willebrand’s Disease and other inherited bleeding disorders. 8800 Roswell Rd., Ste. 170, Atlanta. 770-518-8272. hog.org.
Juvenile Diabetes Research Foundation, Georgia Chapter. Offers support and programming for families of children with diabetes, provides education for caregivers and hosts fundraising events for diabetes research. 3525 Piedmont Rd. NE, Bldg. 6, Ste. 300, Atlanta. 404-420-5990. jdrfgeorgia.org.
Leukemia and Lymphoma Society, Georgia Chapter. Provides education, funding for blood cancer research and patient services including referrals, financial support and literature about the diseases. 3715 Northside Pkwy., Bldg. 400, Ste. 300, Atlanta. 404-720-7900 lls.org/ga.
Sickle Cell Foundation of Georgia, Inc. Provides screenings, counseling, emergency financial assistance and summer camp. 2391 Benjamin E. Mays Dr. SW, Atlanta. 404-755-1641. sicklecellga.org.
BRAIN AND SPINAL INJURIES
American Spinal Injury Association. Provides information to families, patients and healthcare professionals on spinal injuries. 2020 Peachtree Rd. NW, Atlanta. 404-355-9772. asia-spinalinjury.org.
Brain Injury Association of Georgia. Offers 25 support groups for survivors of traumatic and acquired brain injury, their families and their caregivers. Programs include a national brain injury information line (800-444-6443), providing information, outreach and referral services. Also provides summer camp opportunities. 1441 Clifton Rd. NE, Atlanta. 404-712-5504. braininjurygeorgia.org.
Brain Tumor Foundation for Children, Inc. Provides emotional and informational support to families, public education and awareness, and fundraising for research. Program includes the Butterfly Fund which provides financial assistance for families in need. 6065 Roswell Rd. NE, Ste. 505, Atlanta. 404-252-4107. braintumorkids.org.
Shepherd Center. A rehabilitation hospital that specializes in treatment of spinal cord and acquired brain injuries, multiple sclerosis and other neurological conditions. 2020 Peachtree Rd. NW, Atlanta. 404-352-2020. shepherd.org.
American Cancer Society. Provides medical information, referrals and treatment decision tools. Offices located throughout metro Atlanta. 800-227-2345. cancer.org.
American Childhood Cancer Organization. A membership organization that offers support, advocacy, services and education for families of children with cancer, survivors and medical professionals. 10920 Connecticut Ave., Ste. A, Kensington, MD. 800-366-2223. acco.org.
Association of Cancer Online Resources. Offers access to online communications that provide support, information and community to persons affected by cancer. 173 Duane St., Ste. 3A, New York, NY. 212-226-5525. acor.org.
CURE Childhood Cancer. Offers educational and support programs for families of children with cancer. Helps fund research for cancer. 1117 Perimeter Center W, Ste. N-402, Atlanta. 770-986-0035. curechildhoodcancer.org.
United Cerebral Palsy of Georgia. Provides support services to individuals with cerebral palsy and other developmental disabilities including therapy, employee training and placement, after school care and summer camps. 3300 Northeast Expy., Bldg. 9, Atlanta. 770-676-2000. ucpga.org.
CRANIO FACIAL CONDITIONS
Children’s Craniofacial Association. Offers information, support and financial assistance to patients and their families, and education for health care providers. 13140 Coit Rd., Ste. 517, Dallas, TX. 800-535-3643. ccakids.org.
CROHN’S DISEASE AND COLITIS
Crohn’s and Colitis Foundation of America, Georgia Chapter. Education and support services for those affected by Crohn’s disease and ulcerative colitis including summer camps, special events and informational workshops. 2250 N. Druid Hills Rd., Ste. 250, Atlanta. 404-982-0616. ccfa.org.
Cystic Fibrosis Foundation, Georgia Chapter. Provides public and professional education materials, fundraising events and support groups for patients and families. 2302 Parklake Dr. NE, Ste. 210, Atlanta. 404-325-6973. cff.org.
Emory University Cystic Fibrosis Center. Offers inpatient and outpatient care, social service support, nutritional information and other resources. 1547 Clifton Rd. NE, Atlanta. 404-727-5728. emoryhealthcare.org.
International Dyslexia Association. Offers information on products, an online store, conferences, support groups and more for children, teens, college students, parents and educators. 40 York Rd., 4th Fl., Baltimore, MD. 800-222-3123. interdys.org.
International Dyslexia Association, Georgia Branch. Provides outreach activities, an online newsletter, a lending library, workshops and fundraising events. 1951 Greystone Rd., Atlanta. 404-256-1232. idaga.org.
Epilepsy Foundation of Georgia. Provides public awareness, support groups, referrals, specialty camps for children and adults, and more. 6065 Roswell Rd., Ste. 515, Atlanta. 404-527-7155. epilepsyga.org.
HEARING AND VISUAL IMPAIRMENT
Alexander Graham Bell Association for the Deaf and Hard of Hearing, Georgia Chapter. Provides legal advocacy, educational seminars, fundraising, scholarships and support programs. Atlanta. 404-233-5332, ext. 3146. gabell.org.
American Foundation for the Blind, National Literacy Center. Provides referrals, educational materials, advocacy, literacy initiatives, and resources on Braille, assistive technology and low vision. 100 Peachtree St., Ste. 620, Atlanta. 404-525-2303. afb.org.
Vision Rehabilitation Services of Georgia. Offers a low vision clinic, vision rehabilitation, a media center, employment assistance and more. 3830 S. Cobb Dr., Ste. 125, Smyrna. 770-432-7280. vrsga.org
Center for the Visually Impaired. A rehabilitation facility for individuals of all ages who are blind or visually impaired. 739 W. Peachtree St. NW, Atlanta. 404-875-9011. cviga.org
Cook Vision Therapy Center. Vision therapy for reading and learning problems. 1395 S. Marietta Pkwy., Bldg. 400, Ste. 116, Marietta. 770-419-0400. cookvisiontherapy.com.
Foundation Fighting Blindness, Georgia Affiliate. Provides public awareness, funds for research and a support group for individuals with visual impairments, retinitis pigmentosa, macular degeneration and other retinal degenerative diseases. 385 Waverly Hall Dr., Roswell. blindnessga.org.
Georgia Council for the Hearing Impaired, Inc. Provides advocacy, job readiness, summer camp for teens and youth, GED preparatory classes and more. 4151 Memorial Dr., Ste. 103-B, Decatur. 404-292-5312. gachi.org.
Georgia Council of the Blind. Information, referral and advocacy including scholarship assistance to post-secondary students, and public education and awareness training. 850 Gaines School Rd., Athens. 888-519-3988 or 706-208-7132. georgiacounciloftheblind.org.
Georgia Library for Accessible Services. Nine sub-regional libraries statewide provide free library service including circulating fiction and non-fiction books and magazines (in Braille or on tape) for individuals with a visual or physical disability. 1800 Century Pl. NE, Ste. 150, Atlanta 404-235-7155. georgialibraries.org/glass.
Georgia Lions Lighthouse Foundation, Inc. Provides vision and hearing services, including glasses, eye care, corrective surgery and hearing aids for financially needy legal Georgia residents. 5582 Peachtree Rd., Chamblee. 404-325-3630. lionslighthouse.org.
Georgia Organization of Parents of Blind Children (GOPBC). Affiliated with the National Federation of the Blind of Georgia; this membership organization for parents and friends of blind children provides support, advocacy, free and low-cost literature, scholarships and more. 315 W. Ponce de Leon Ave., Ste. 1020, Decatur. 404-371-1000. gopbc.org.
Georgia PINES (Parent Infant Network for Educational Services). A statewide early intervention program offering free services to families of children birth to 5 years with hearing and/or vision impairment. 890 N. Indian Creek Dr., Clarkston. 404-298-4882. gapines.org.
Georgia Sensory Assistance Project. Services for children and youth from birth through 21 years with deaf blindness, including in-home and school consultation, family support, networking, referrals and workshops. Georgia State University, Dept. of Educational Psychology and Special Education, Atlanta. 404-413-8312. education.gsu.edu/georgiadeafblindproj.
Georgia Speech-Language-Hearing Association. Offers a directory of Georgia speech, language and hearing professionals, facilities and resource services. 20423 State Rd. 7, Ste. F6-491, Boca Raton, FL. 561-477-8100 gsha.org.
National Federation of the Blind. Provides public education, scholarships, a free audio newspaper, referral services, advocacy and more. 200 E. Wells St., Baltimore, MD. 410-659-9314. nfb.org.
National Library Service for the Blind and Physically Handicapped. Administers a free program that loans audio and Braille books, magazines, music scores and specially-designed playback equipment to U.S. residents who are unable to use standard print materials because of visual or physical impairment. 1291 Taylor St. NW, Washington, D.C. 202-707-5100. loc.gov/nls.
National Organization of Parents of Blind Children. Parent support and networking, resources and a national pen pal program for youth. 200 E. Wells St., Baltimore, MD. 410-659-9314.
Northside Hospital Audiology. Comprehensive evaluations of various auditory needs including all basic audiological assessments and auditory processing testing for all ages. Atlanta, Alpharetta and Johns Creek. 404-851-6743. northside.com.
Prevent Blindness Georgia. The mission is to prevent blindness and preserve sight for all Georgians. Education, training, research, advocacy and screening programs dedicated to preventing vision loss and preserving sight. 739 W. Peachtree St., Ste. 200. 404-266-0071. pbga.org.
HEART AND LUNG
American Heart Association, Georgia Affiliate. Community events and educational materials available on prevention, diagnosis and treatment of heart disease and stroke. 1101 Northchase Pkwy., Ste. 1, Marietta. 678-224-2000. americanheart.org.
American Lung Association, Southeast Region. Provides educational programs and services, advocacy and an overnight camp for children with asthma. 2452 Spring Rd., Smyrna. 770-434-5864. lungga.org
American Kidney Fund. Provides financial assistance for transplants and kidney patients on dialysis, patient services, public education, clinical strategies, research, summer programs for children and more. 6110 Executive Blvd., Ste. 1010, Rockville, MD. 800-638-8299. kidneyfund.org.
National Kidney Foundation of Georgia. Programs in research, public information, professional training, organ donation and patient services including summer camp and health fairs. 2951 Flowers Rd. S, Ste. 211, Atlanta. 770-452-1539. kidneyga.org.
Lupus Foundation of America, Georgia Chapter. Offers support groups and educational programs for Lupus patients. 1850 Lake Park Dr., Ste. 101, Smyrna. 770-333-5930. lupusga.org.
MEDICALLY FRAGILE CHILDREN
Fragile Kids Foundation. Provides medical equipment not covered by private or government sponsored insurance. 3350 Riverwood Pkwy., Ste. 1400, Atlanta. 770-951-6111. fragilekids.org.
Variety of Georgia. Variety Freedom Program provides funding for mobility so that kids can get out via wheelchairs, walkers, van lifts, house ramps, adaptive car seats & strollers, specially-equipped bicycles & tricycles and other items necessary to increase a child’s access to and participation in the community. 9800 Medlock Bridge Road, Ste. 1, Johns Creek. 678-994-4210. varietyofgeorgia.org/programs.html.
Mental Health America of Georgia. Offers advocacy services and educational resources for families, health care providers and the public. 100 Edgewood Ave. NE, Ste. 502, Atlanta. 404-527-7175. mhageorgia.org.
NAMI Georgia. Provides emotional support and education for families, public awareness, a statewide helpline (800-728-1052) and advocacy services. 3050 Presidential Dr., Ste. 202, Atlanta. 770-234-0855. namiga.org.
National Alliance on Mental Illness (NAMI). National support group with online discussion groups, advocacy, support and more. 3803 Fairfax Dr., Arlington, VA. 703-524-7600. nami.org.
MENTAL RETARDATION/DOWN SYNDROME
Annandale Village. A private, non-profit community for adults with developmental disabilities. Offers residential services, day programs and respite care, and provides recreational programs, and job placement and training. 3500 Annandale Ln., Suwanee. 770-945-8381. annandale.org.
Right in the Community. Provides for the needs of families who have children with mental retardation or other developmental disabilities. Support groups, workshops, group homes, day camps, more. 1830 Water Pl., Ste. 120, Atlanta. 770-427-8401. rightinthecommunity.org.
The Arc of Clayton County. Offers support, advocacy and information/referral to existing services for people with mental retardation. 404-281-7322.
The Arc of Newnan and Coweta County. Helps intellectually disabled adults live as independently as possible by providing job training, transportation, housing arrangements, money management, recreation and other services. The Rutledge Center, 61 Hospital Rd., Newnan. 770-253-1189. rutledgecenter.org.
Down Syndrome Association of Atlanta. Offers public education, advocacy and support to parents of children with Down syndrome including information, outreach programs, social events and financial assistance to parent groups. 4355 J Cobb Pkwy., Ste. 213, Atlanta. 404-320-3233. atlantadsaa.org.
National Down Syndrome Congress. Provides informational materials, referrals to local resources, national conferences and advocacy efforts. 1370 Center Dr., Ste. 102, Atlanta. 770-604-9500. ndsccenter.org.
Muscular Dystrophy Association. Provides informational materials, networking, referrals to local resources, summer camps and an equipment loan program. 2187 Northlake Pkwy., Bldg 9, Ste. 116, Tucker. 770-621-9800. mda.org.
Myasthenia Gravis Foundation, Georgia Chapter. Provides information to patients, physicians and the general public. Atlanta. 770-973-3269. ga-mgfa.org.
Prader-Willi Syndrome Association of Georgia. Provides information, education and advocacy, conferences and workshops, and individual and family support. 562 Lakeland Plaza, Ste 327, Cumming. 770-886-2334. pwsaga.org.
Spina Bifida Association of Georgia. Provides educational materials and programs, mentoring, prevention programs and advocacy. 5072 Bristol Ind. Way, Ste. F, Buford. 770-939-1044. spinabifidaga.org
Muscular Dystrophy Association. Provides informational materials, networking, referrals to local resources, summer camps and an equipment loan program. 2187 Northlake Pkwy., Bldg 9, Ste. 116, Tucker. 770-621-9800 mda.org
Myasthenia Gravis Foundation, Georgia Chapter. Provides information to patients, physicians and the general public. Atlanta. 770-973-3269. ga-mgfa.org.
Prader-Willi Syndrome Association of Georgia. Provides information, education and advocacy, conferences and workshops, and individual and family support. 562 Lakeland Plaza, Ste. 327, Cumming. 770-886-2334. pwsaga.org.
Spina Bifida Association of Georgia. Provides educational materials and programs, mentoring, prevention programs and advocacy. 5072 Bristol Ind. Way, Ste. F, Buford. 770-939-1044. spinabifidaga.org.
Tourette Syndrome Association of Georgia. Provides training, referrals, advocacy services, newsletters for children and young adults and free educational materials. Fall family retreat partnership with Camp Twin Lake. 706-248-9784. georgiatourette.org.
Tuberous Sclerosis Alliance. Provides information, access to resources and Georgia contacts and advocates for tuberous sclerosis complex. 801 Roeder Road, Ste. 750, Silver Spring, MD. 800-225-6872 or 301-562-9890. tsalliance.org.
Atlanta Turner Syndrome Society. Support with meetings several times a year. 770-483-5194. turnersyndrome.org.